Conversation:

A Conversation for Multiple Sclerosis

sclerosis sucks!

Post 1

kimoe

Started conversation May 7, 2003

Hi!

A few days ago I stumbled over this website:

http://www.multiplesclerosissucks.com

If you've got sclerosis or (as I) know someone who do, you'll enjoy it! Because it really does sucks!

Kimoe

sclerosis sucks!

Post 2

pedboy

Posted May 7, 2003

Hehe, that site was referenced in one of my earlier drafts of the article, but got lost some how.
Thank you for that. The author of that site is Ian Parberry, a professor of computer science, in Texas USA.
And yes , MS sucks really bad.

smiley - zen
smiley - towel

pedboy U200417

sclerosis sucks!

Post 3

abbi normal "Putting on the Ritz" with Dr Frankenstein

Posted May 8, 2003

Hmm I will check that site outsmiley - smileyThanks

Any good sites are appreciated and can be posted at De Myelin Nation here A889194 . Warnings about bad ones or scams are also most welcomed there. We started as myelin diseases sort of hang out. We are in transition and welcome all chronic problems whether you have them or someone you love.
We are not dedicated to education but friendships, we do have threads for links and brief definitions.

This article will be an assett. Thanks!
smiley - peacedove
smiley - disco

sclerosis sucks!

Post 4

zendevil

Posted May 9, 2003



YUP! I second that!

smiley - ok

smiley - zensmiley - devilTerri

sclerosis sucks!

Post 5

xero

Posted May 9, 2003

My mom has MS, it sucks!

sclerosis sucks!

Post 6

kimoe

Posted May 9, 2003

Ha! My mum has MS too. Did you visit the page I referred to above? My mum is not very keen to talk about the MS (and that's an understatement), and I found the page very! helpfull in understanding some of what's going on. And I liked his style; pretty tough guy, I'd say.

Seeyah

kimoe

sclerosis sucks!

Post 7

zendevil

Posted May 9, 2003



Hi kimoe, hi xero!

I shall go & have a little lurk on your pages, meanwhile, every sympathy to you & please, please go to De Myeliin Nation & sign up, as Friends & family or "Full members", entirely up to you! But the more people who do this, the more fuss we can make about what is so often a misunderstood, under-researched & unfortunately non-trendy syndrome!

smiley - zensmiley - devilTerri

A889194 will get you there!

sclerosis sucks!

Post 8

pedboy

Posted May 10, 2003

Hi kimoe, hi xero

You are so right , today is what I consider "a bad day" for me.
Then I say wtf.

smiley - zen
smiley - towel
pedboy U200417

sclerosis sucks!

Post 9

kimoe

Posted May 10, 2003

wtf... English not being my mother tongue, I just had to stop and think.. Got it now smiley - winkeye

Hang in there, and have a... better day.

smiley - smiley

kimoe

sclerosis sucks!

Post 10

Researcher 227668

Posted May 12, 2003

Thanks for your kind words about my website, http://multiplesclerosissucks.com!
Ian

sclerosis sucks!

Post 11

abbi normal "Putting on the Ritz" with Dr Frankenstein

Posted May 12, 2003

smiley - wow It's your site !
Hello and nice to meet yousmiley - smiley
smiley - disco

sclerosis sucks!

Post 12

Researcher 227668

Posted May 13, 2003

Yes, it's my website. I'm typing to you from Texas! I was just doing my usual evening snoop around the internet to see who's talking about me and I ran into your post.

sclerosis sucks!

Post 13

xero

Posted May 13, 2003

I checked out the site yesterday Ian, that's good stuff. The religion section was great.
smiley - cheers, xero

sclerosis sucks!

Post 14

pedboy

Posted May 13, 2003

Hello and welcome to HHGG Ian. Thank you for a wonderful article, and you may want to check out the DE Mylin Nation while here, there is a link to it on my page.smiley - cheers

smiley - zen
smiley - towel

pedboy U200417

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