A Conversation for Multiple Sclerosis
kimoe Started conversation May 7, 2003
A few days ago I stumbled over this website:
If you've got sclerosis or (as I) know someone who do, you'll enjoy it! Because it really does sucks!
pedboy Posted May 7, 2003
Hehe, that site was referenced in one of my earlier drafts of the article, but got lost some how.
Thank you for that. The author of that site is Ian Parberry, a professor of computer science, in Texas USA.
And yes , MS sucks really bad.
abbi normal "Putting on the Ritz" with Dr Frankenstein Posted May 8, 2003
Hmm I will check that site outThanks
Any good sites are appreciated and can be posted at De Myelin Nation here A889194 . Warnings about bad ones or scams are also most welcomed there. We started as myelin diseases sort of hang out. We are in transition and welcome all chronic problems whether you have them or someone you love.
We are not dedicated to education but friendships, we do have threads for links and brief definitions.
This article will be an assett. Thanks!
kimoe Posted May 9, 2003
Ha! My mum has MS too. Did you visit the page I referred to above? My mum is not very keen to talk about the MS (and that's an understatement), and I found the page very! helpfull in understanding some of what's going on. And I liked his style; pretty tough guy, I'd say.
zendevil Posted May 9, 2003
Hi kimoe, hi xero!
I shall go & have a little lurk on your pages, meanwhile, every sympathy to you & please, please go to De Myeliin Nation & sign up, as Friends & family or "Full members", entirely up to you! But the more people who do this, the more fuss we can make about what is so often a misunderstood, under-researched & unfortunately non-trendy syndrome!
A889194 will get you there!
pedboy Posted May 10, 2003
Hi kimoe, hi xero
You are so right , today is what I consider "a bad day" for me.
Then I say wtf.
kimoe Posted May 10, 2003
Researcher 227668 Posted May 12, 2003
Thanks for your kind words about my website, http://multiplesclerosissucks.com!
abbi normal "Putting on the Ritz" with Dr Frankenstein Posted May 12, 2003
Researcher 227668 Posted May 13, 2003
Yes, it's my website. I'm typing to you from Texas! I was just doing my usual evening snoop around the internet to see who's talking about me and I ran into your post.
xero Posted May 13, 2003
pedboy Posted May 13, 2003
Hello and welcome to HHGG Ian. Thank you for a wonderful article, and you may want to check out the DE Mylin Nation while here, there is a link to it on my page.
Key: Complain about this post
- 1: kimoe (May 7, 2003)
- 2: pedboy (May 7, 2003)
- 3: abbi normal "Putting on the Ritz" with Dr Frankenstein (May 8, 2003)
- 4: zendevil (May 9, 2003)
- 5: xero (May 9, 2003)
- 6: kimoe (May 9, 2003)
- 7: zendevil (May 9, 2003)
- 8: pedboy (May 10, 2003)
- 9: kimoe (May 10, 2003)
- 10: Researcher 227668 (May 12, 2003)
- 11: abbi normal "Putting on the Ritz" with Dr Frankenstein (May 12, 2003)
- 12: Researcher 227668 (May 13, 2003)
- 13: xero (May 13, 2003)
- 14: pedboy (May 13, 2003)